So out has been over a week and we are still working on getting Aidens formula. And I have seen what not being on it is now doing to my sweet boy and it angers me! Spots all over his tummy that are red and sore and weeping, sore red butt, puking and just fussiness... Why is it such a problem to get this figured out? The insurance has denied it and even being double covered, the state won't pay for it unless he's on a feeding tube... Really what is the difference? You would think it would help prevent other health issues??? Uhhh it just angers me! Lol ok rant over for now...
I'm starting this blog to keep family and friends updated on our little man Aiden's progress through his fight with Ohtahara syndrome.
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