So he also was a good boy and had several of his breath holding spells , one of which our neurologist helper got to witness. They agreed, wow those are quite the fit but they are not seizures!!! It is so great to get a for sure answer and not constantly be in doubt.
The neurologist also said he's very happy with aidens EEG, although it is still abnormal and has seizure causing activity, that his brain is developing which is terrific news because that gives him the opportunity to develop which is of course all I can hope and pray for!!!
We are extremely lucky he is doing really well, is happy and has quite the little personality ;) our next step is to start cutting back on his seizure med and see If that gets us any more ability to develop, a scary thing to do but the less meds he's on sometimes the better, it's just finding the right levels that keep his seizures controlled but where he's not sedated and unable to develop.
Thank you again to everyone who still keeps tabs on us, we really appreciate it!!
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