So we had a total of 4 seizures the 3 days after we stopped the steroid and now have gone back to not having any!!!! It is still like walking on egg shells every day waiting for the other sho to drop .. and the days he had the seizures it just made my heart break... but we continue to take it one day at a time. We have had some problems with his eating and have got to the point a couple times where we debated putting his feeding tube back in.... but after talking to the advice nurse I'm 100% sure its the thrush still, and that he wasn't on enough medicine to get rid of it... so since yesterday things have already gotten much better ; 0 ) its just hard because things can change so fast and to the opposite day by day..
Our little squishy is 3 months old already!!! I cannot believe how much we have been through and how we have gone through so much in the 3 months..
Our little squishy is 3 months old already!!! I cannot believe how much we have been through and how we have gone through so much in the 3 months..
No comments:
Post a Comment