So im sitting here as they are getting ready to do a spinal tap on my 6 day old son, mixed emotitons, hes crying and fighting with them wich makes me excited, but at the same moment it breaks my heart.... After they do that they will once again hook him up to the eeg machine and do a test for a super rare vitamin b6 disorder, at this point I am praying and hoping that this is what he has..... As it is easily treated.. So please please god have this be the key!!!!
I'm starting this blog to keep family and friends updated on our little man Aiden's progress through his fight with Ohtahara syndrome.
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