I dont know if its the lack of sleep, the fact I hafta sleep in a recliner or what, but im sooo irritated, aiden starts showing hes hungry about 1/2 hr before "his time" so she says to hold out, so I do ... Then there is so much shit that they require before I can feed him, hes completly worn out tired and wont eat... So he ends up eat ok ng w the tube... Ahhhh I just want to have him better NOW so we can go home!!!
I'm starting this blog to keep family and friends updated on our little man Aiden's progress through his fight with Ohtahara syndrome.
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