So once again we are admitted back to emanuel ... Aiden is still having seizures but now he is so druged up that I am having to force feed him and it takes me a good hour to get him to take 2oz .. Its getting really hard to be constantly on edge and worried nonstop, worried when he has seizures and worried hes not eating and worried about the future... I can feel myself starting to detach ... And constantly on the verge of tears... So hopefully from here we can find the balance between seizures and wake and being able to function... And of corse hopefully we can find an answer
I'm starting this blog to keep family and friends updated on our little man Aiden's progress through his fight with Ohtahara syndrome.
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