So tonight we had to play dr and put Aidens feeding tube back in.... it was just the topper to the horrible day... it just is suck a freekin up and down rollercoaster, and it sucks and is so hard to let go of the one normal thing I had with him.. there is just no bonding involved with feeding your kid through a freekin tube.... but constantly being stressed, is he gonna wake up to eat, is he gonna eat enough, will he take his meds.... this is my new life....
On another shitty note we had to also use his rescue meds for his seizures ... so here's to hopefully a better tomorrow ....
On another shitty note we had to also use his rescue meds for his seizures ... so here's to hopefully a better tomorrow ....
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