So holly cow its already June! I feel like may went by in a complete fog. Aiden will be 2 months old already!!! He is getting so big already, even with still having his feeding tube in he's been eating for the most part on his own durring the day and is already 11lbs 13 oz!!!
He has been pretty much under control with his seizures, they are pretty short and sometimes we go a couple hours without any but his normal right now is about 2 an hour... but for whatever reason he stays the same for a week and then they get to were they're pretty frequent up to 4 an hour and we have to call the dr and get an increase in his meds... so thats where we are today... sitting here waiting for the dr to call us back...
Wte also got a call from the hospital in Seattle to have us come up for a orientation meeting with the neurologist to see if Aiden woul be a good candidate for a medical diet that is know to be an antiseizure med. The diet basically is high high fat and tricks your body into thinking its starving and so instead of using glucose for fuel it causes your body to use the fat instead .... so Wednesday the 22nd I have to drive up to seattle and if they determine it would be a good thing for him then he would be admitted for 3 or so days to make sure his body can handle the diet.
So hopefully the diet will be a good fit and it will help his seizures.
So we just go day to day and try to enjoy the best of each day ... which is a struggle but were learning ...
He has been pretty much under control with his seizures, they are pretty short and sometimes we go a couple hours without any but his normal right now is about 2 an hour... but for whatever reason he stays the same for a week and then they get to were they're pretty frequent up to 4 an hour and we have to call the dr and get an increase in his meds... so thats where we are today... sitting here waiting for the dr to call us back...
Wte also got a call from the hospital in Seattle to have us come up for a orientation meeting with the neurologist to see if Aiden woul be a good candidate for a medical diet that is know to be an antiseizure med. The diet basically is high high fat and tricks your body into thinking its starving and so instead of using glucose for fuel it causes your body to use the fat instead .... so Wednesday the 22nd I have to drive up to seattle and if they determine it would be a good thing for him then he would be admitted for 3 or so days to make sure his body can handle the diet.
So hopefully the diet will be a good fit and it will help his seizures.
So we just go day to day and try to enjoy the best of each day ... which is a struggle but were learning ...
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