So we continue to be seizure free! But man is little man unhappy he has slept for maby 5 hours today, the rest of the time he is wriggling and flailing in pain.... it kills me ... he started running a little fever also today so I fear that something is coming. We took him into the urgent care and now fettl like we are truly his dr... the dr there had mike explain what he has and just said he could have a stomache ache from all the meds, and that the thrush could be causing the pain and fever ... but he was no help other tha n to listen to his lungs and rule that out. So tomorrow we call his regular dr to see if there is anything we can do... and hope we get some sleep tonight ...
I'm starting this blog to keep family and friends updated on our little man Aiden's progress through his fight with Ohtahara syndrome.
Please continue to tell us about your baby boy. I am following you from Paris. Thank you for your posts, thank you for every line you write.
ReplyDeleteParis!!!! Wow that is amazing!!! how did you hear about Aiden? Thank you for the support
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