Update 6/14

So its been a little bit since I posted last, things have been a little crazy. We went to longbeach this last weekend for Kailas softball tournament and hagd a great time! Aiden did great being hauled around from field to field and having mom screaming like a crazy person lol.

So last week aiden stagryed having the infantile spasms and the dr prescribed another drug to hopefully stop those, so we started the drug Saturday and not only did it stop the spasms but also his regular seizures seemed to be cut in half! Saturday he only had 10 seizures all day!!! As exciting as this is the drug they have him on is dangerous and now we have to have his blood pressure checked 2xs a week and he has tot be seen by his neurologist 1xs a week... and have all kinds of labs done each week to check his blood sugar his blood count ect and thy said some kids have had heart failure due to this drug... so I am excited it seems to be helping, and scared to death were causing more problems... and its not a drug he can be on for any long period of time... so as the neurologist said today it could just be a bandage until we can get aiden on the ketogenic diet... I just don't know how we are going to afford all the trips to the dr 3xs a week....