Neurologist apt today

So things have been going a little better, we have gotten to the point were we are telling the neurologist what we think works better and what we want to do.... which is so much harder than u would think. I've always had the mindset that the dr knows what their talking about don't question them their the ones who went to medical school not me... so it was hard. Aiden was having more seizures than what we wanted, so we called the neurologist and the last time they told us to give him an extra dose of one of his meds he has been on since the beginning as he seems to tolerate it better, well it worked and didn't cause him to be too sleepy, so we thought that would be what we did this time, well it was the head neurologist who was on call and she told us to give him a larger dose of the other drug he's on but that one makes him more sleepy. So me and mike talk about it and decide we don't want to do that, that what we did last time worked better and had the least side effects, so we called her back and told her what we wanted to do, and that we didn't want to do what she had said... she was a little taken back for a minute, but agreed that if it worked last time we could do that. Its just hard because the head neurologist is negative and tells us "well there's really not a lot we can do, this is just happens with this syndrome" well I'm just not ready to give up... I know there are many drugs we havnt tried and I don't like the attitude that that's just how it is... so this is where we take charge and do things our way... and its pretty empowering and makes us feel like we have some control over the situation